Clio boy battling rare genetic disease - WNEM TV 5

Clio boy battling rare genetic disease

Posted: Updated:
Luke LeClaire Luke LeClaire
CLIO, MI (WNEM) -

A Clio boy's family is reaching out to the community for support as their son fights a deadly genetic disease.

Luke LeClaire, a second-grade student from Lacure Elementary in Clio, was diagnosed with the disease called Adrenoleukodystrophy (ALD). This deadly disease affects the white matter of the brain and the adrenal glands.

Luke has been on medication since he was 8 months old and recently learned that the medication is no longer working. The next step for him is a bone marrow transplant, which he is now undergoing in Minnesota.

Luke's mother had to take a break from her current job and will be staying with him for four to six months while he recovers.

The family is holding a spaghetti dinner on Feb. 15 to raise money to help offset the costs of battling the disease. A portion of the proceeds will be used for Luke's father and brother, who will be traveling on the weekends to join them.

The event is from 3 p.m. to 7 p.m. at Clio High School at 1 Mustang Drive in Clio. Suggested dinner prices range from $7 for adults, $5 for kids ages 5 to 12, and children under 4 are free.

Family friendly activities include:

•Bake Sale
•50/50 Raffle
•Live Music with Alter Ego
•Inflatable Obstacle Course courtesy of Sgt. Vedder of the National Guard
•Silent Auction
•Super Hero Photos by Regina Myers Photography & Aaron C. Photography – Suggested Donation $5
•Face Painting & Balloon Animals

All money raised through fundraising efforts will be donated directly to the LeClaire family. The money raised will be used to help with the cost of the bone marrow treatment, medicine, living expenses and travel costs.

The family thanks the public for its support.

If anyone would like to make a donation they can by clicking here. Luke's father set up a savings account at Case Bank in Clio if the public would like to donate and not go through Paypal. If someone would like to donate for the raffle the can contact Michele Burger at: Mburger69@gmail.com

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